Adaptation to Chronic
Childhood Illness
This book overviews a framework for examining the development and adapatation of children
with chronic illness. It includes biomedical, psychological, and social-ecological factors
in developing intervention efforts.
Arthritis and Depression
An article from the Missouri Arthritis Rehabilitation Research and Training Center on
depression in children and adults with arthritis. Health-Related Disorders: Sample Chapter-Asthma
Information about asthma from the book Health-Related Disorders in Children and
Adolescents.
Health-Related Disorders: Sample
Chapter-Autism
Information about autism from the book Health-Related Disorders in Children and
Adolescents.
Health-Related Disorders: Sample
Chapter-Cancer
Information about cancer in children from the book Health-Related Disorders in
Children and Adolescents.
Health-Related Disorders: Sample
Chapter-Cardiac Disorders
Information about the many ways children are affected by cardiac disorders from the book
Health-Related Disorders in Children and Adolescents.
Health-Related Disorders: Sample
Chapter-Cerebral Palsy
Information about the different types of cebral palsy from the book Health-Related
Disorders in Children and Adolescents.
Health-Related Disorders: Sample
Chapter-Cystic Fibrosis
Information about cystic fibrosis from the book Health-Related Disorders in Children
and Adolescents.
Health-Related Disorders: Sample
Chapter-Deaf-Blindness
Information about the condition known as deaf-blindness from the book Health-Related
Disorders in Children and Adolescents.
Health-Related Disorders: Sample
Chapter-Diabetes
Information about diabetes in children and adolescents from the book Health-Related
Disorders in Children and Adolescents.
Health-Related Disorders: Sample
Chapter-Leukemia
Information about childhood leukemia from the book Health-Related Disorders in
Children and Adolescents.
Health-Related Disorders: Sample
Chapter-Seizure Disorders
Information about seizure disorders from the book Health-Related Disorders in Children
and Adolescents.
ParentPals
Parent Pals provides general information, weekly tips, games, book resources, and news and
views for parents with children who have special needs or are gifted.
Health Finder - Specialized Site for Families,
Children, Teens
A gateway to consumer health and human services information developed by the U.S.
Department of Health and Human Services.
Children's National Medical Center
Pediatric healthcare information for parents and children.
National Center for Chronic Disease Prevention
and Health Promotion
Information about chronic diseases, risk behaviors, and approaches to prevention.
National Institute of Child Health and Human
Development
The NICHD conducts and supports laboratory, clinical and epidemiological research on the
reproductive, neurobiologic, developmental, and behavioral processes that determine and
maintain the health of children, adults, families and populations.
Federation for Children with Special Needs
The Federation is a center for parents and parent organizations to work together on behalf
of children with special needs and their families.
Cerebral Palsy (CP)
Information and support resources for parents of children with disabilities.
United Cerebral Palsy
UCP provides information on cerebral palsy and acts as an advocate for the rights of
persons with any disability.
American Academy of Allergy, Asthma and Immunology
Information on the study and treatment of allergic diseases.
Allergy, Asthma & Immunology Online
Information and news for patients and parents of patients.
Allergy and Asthma Network · Mothers of Asthmatics,
Inc.
A non-profit organization founded to help families in their quest to overcome and maintain
control of asthma, allergies, and related conditions.
American Medical Association
AMA offers on-line health information for families.
American Cancer Society
News and information on cancer, prevention, and treatment.
The National Enuresis Society (NES)
NES offers information about enuresis to the public, doctors, and other medical personnel
who work with children and their families.
Pediatric Points of Interest from
the Johns Hopkins University Department of Pediatrics
A searchable collection of links to resources in Pediatrics and Child Health.
Internet Resources for Special Children (IRSC)
The IRSC web site offers information relating to the needs of children with disABILITIES
on a global basis.
Society for Developmental and Behavioral Pediatrics
(SDBP)
SDBP's goal is to improve the health care of infants, children, and adolescents by
promoting research and teaching in developmental and behavioral pediatrics.
Centers for Disease Control and Prevention (CDC)
CDC offers specific health information on topics related to infants and children, and
adolescents and teens.
National Center for Environmental Health
(NCEH) Centers for Disease Control and Prevention (CDC)
NCEH offers information on environmental public health issues and programs that benefit
children.
National Institutes of Health
NIH is the Federal focal point for biomedical research in the U.S.
MEDLINE--National Library of Medicine
The National Library of Medicine's (NLM) bibliographic database covers the fields of
medicine, nursing, dentistry, veterinary medicine, the health care system, and the
preclinical sciences. The MEDLINE file contains bibliographic citations and author
abstracts from approximately 3,900 current biomedical journals published in the United
States and 70 foreign countries.
Health and Human Services
Government Information Xchange provides links to U.S. Government health and safety sites.
Center for Children with
Chronic Illness and Disability
C3ID is committed to increasing and applying knowledge that fosters the physical,
psychological and social development and competence of infants, children and adolescents
with chronic illnesses and disabilities and their families.
The Alliance of Genetic Support Groups, Inc.
A national coalition of consumers, professionals and genetic support groups that voices
the concerns of children, adults and families living with, and at risk for, genetic
conditions.
National Pediatric & Family HIV Resource
Center
The National Pediatric & Family HIV Resource Center at University of Medicine and
Dentistry of New Jersey is a non-profit organization that serves professionals who care
for children, adolescents and families with HIV infection and AIDS.
Autism Society of America
The mission of the Autism Society of America is to promote lifelong access and
opportunities for persons within the autism spectrum and their families.
American Hyperlexia Association
A non-profit organization comprised of parents and relatives of children with hyperlexia,
speech and language professionals, education professionals, and other concerned
individuals.
American Heart Association
AHA provides education and information on fighting heart disease and stroke.
American Academy for Cerebral Palsy and
Developmental Medicine
A multidisciplinary scientific society devoted to studying cerebral palsy and other
childhood onset disabilities.
Cystic Fibrosis Foundation
A resource for information about cystic fibrosis.
American Diabetes Association
The ADA provides diabetes research, information, and advocacy.
The Juvenile Diabetes Foundation
JDF's main objective is to support and fund research to find a cure for diabetes and its
complications.
National Institute of Diabetes and Digestive and
Kidney Diseases NIDDK offers health information and education programs on
digestive, endocrine, metabolic, kidney, urologic, and hematologic diseases, as well as
diabetes, nutrition, and obesity.
Leukemia Society of America
The Leukemia Society of America is a national voluntary health agency dedicated to curing
leukemia, lymphoma, Hodgkin's disease and myeloma - and to improving the quality of life
of patients and their families
Epilepsy Foundation of America
EFA offers information, programs and services for people with epilepsy, as well as a Kids
Club.
Directory of National Genetic
Voluntary Organizations
Listing of support groups from the Aliance of Genetic Support Groups.
Camps for Children with
Diabetes
Directory of camps for children with diabetes.
Including Your Child
A booklet for parents of children with special needs.
Breathe Easy (asthma)
A book to help asthmatic children undrstand their illness and overcome their fears.
Little Tree (serious illness or
physical trauma)
An engaging book that helps children accept the changes and discover new strengths that
accompany serious illness.
Russell Is Extra Special (autism)
Explaining autism to children can be a difficult task. This heart-warming portrayal of an
autistic boy and his family will help children and their parents understand this serious
developmental disorder
Sammy's Mommy Has Cancer
Young children learn that a person with a serious illness can have good and bad days, and
that families can cry and laugh together.
Sarah and Puffle (diabetes)
This charming story offers children information about diabetes and the feelings that often
accompany the disease.
What About Me? (sibling's
illness)
Beautifully written and illustrated, this story deals with the many complicated feelings
the well child experiences when a brother or sister becomes ill.
You Can Call Me Willy (AIDS)
In this story, Willy talks about her illness and exhibits exceptional strength and courage
as she learns to cope with its symptoms and the side effects of treatment, to put up with
classroom taunts, and to find fun and friendship. |